Resources for Patients

If you or a loved one has recently been diagnosed with Wolfram Syndrome and are seeking specialized care, you can find a list of experienced physicians across various states and countries. This resource aims to connect you with healthcare professionals who understand the unique needs associated with Wolfram Syndrome.

Dr Sarah McMahon MBBS Hons PhD FRACP
Senior Staff Specialist Endocrinology and Diabetes

Address: Children’s Health Queensland Hospital and Health Service Level 12, Queensland Children’s Hospital 501 Stanley Street South Brisbane QLD 4101

Alexia S Peña Vargas, MD, FRACP, PhD
Pediatrics/ Endocrine and Diabetes

Address: The University of Adelaide AUSTRALIA 5005

Milena Teles, MD,PhD
Clinical and Research Endocrinologist Diabetes and Genetics Unit

Address: Sao Paulo University – SP – Brazil

Marc Nicolino, MD, PhD
Professor of Pediatrics and Head Division of Pediatric Endocrinology

Address: Hôpital Femme-Mère-Enfant LYON University Pediatric Hospital Groupement Hospitalier Est 59 bd Pinel 69677 Bron / Lyon cedex FRANCE

Julia Rohayem, MD
N/A

Address: University Hospital in Münster

Dimitris T. Papadimitriou MD, MSc, PhD
Pediatric Endocrinologist Director, Department of Pediatric-Adolescent Endocrinology & Diabetes

Address: Athens Medical Center 58, KIfissias av. 15125, Maroussi, Athens, Greece

Sailesh Lodha, MD
DM Endocrinology/Senior consultant

Address: Fortis Escorts hospital, Jaipur and Rukmani Birla Hospital, Jaipur.

Alternative to Dr.Sailesh: Dr Varsha Lodha
N/A

Address: Fortis Escorts hospital, Jaipur and Rukmani Birla Hospital, Jaipur.

Giulio Frontino, MD, MSc
Department of Pediatrics

Address: IRCCS Ospedale San Raffaele Diabetes Research Institute IRCCS Ospedale San Raffaele Via Olgettina 60 20132 Milano Italy

Prof. Luciana Rigoli, MD
Department of Pediatric Sciences, University Polyclinic

Address: Consular Valeria Street 98125 Messina (ITALY)

Naoko Iwasaki, MD, PhD
Professor of Institute of Geriatrics, Institute of Medical Genetics, Diabetes Center and Institute for Integrated Medical Sciences

Address: Tokyo Women’s Medical University, Cross Tower Floor 20,  Shibuya 2-15-1, Shibuya-ku, Tokyo, 150-0002, JAPAN

Rinki Murphy PhD, FRACP, MBChB
Associate Professor of Medicine | Specialist Diabetes Physician

Address: University of Auckland | Auckland District Health Board | Counties Manukau District Health Board Principal Investigator Maurice Wilkins Centre for Biodiscovery Department of Medicine|Park Road, Grafton Faculty of Medical and Health Sciences | The University of Auckland | Private Bag 92019  Auckland 1142 | New Zealand

Wojciech Mlynarski, MD, PhD
N/A

Address: University Hospital in Lodz

Gema Esteban Bueno
Family Doctor

Address: Picadilly 7 Costacabana, Almería, 04120 Spain

Eylem Cagiltay, MD
Internal Medicine, Endocrinology and Metabolic Diseases Specialist

Address: İzmir Asker Hastanesi, İç Hastalıkları Kliniği, 35280, Hatay/İZMİR/TURKEY

Dr.Timothy Barrett PhD MB
Director, Centre for Rare Disease Studies

Address: IBR West Medical School University of Birmingham Edgbaston Birmingham B15 2TT UK 

Fumihiko Urano, MD, PhD
Samuel E. Schechter Professor of Medicine, Professor of Medicine and Pathology & Immunology, Division of Endocrinology, Metabolism and Lipid Research

Address: 4921 Parkview Pl, St. Louis, MO 63110, USA 8808A Wohl Hospital

Bess A. Marshal, MD
Professer of Pediatrics, Endocrinology and diabetes Clinical Director, Wolfram Syndrome Clinic

Address: 4921 Parkview Pl, St. Louis, MO 63110, USA 8808A Wohl Hospital

Neil H. White, MD, CDE
Professer of Pediatrics

Address: 4921 Parkview Pl, St. Louis, MO 63110, USA 8808A Wohl Hospital

Dr. Afaf Alsagheir
Consultant, Pediatric Endocrine / Metabolism

Address: King Faisal Specialist Hospital Makkah Al Mukarramah Branch Rd, Al Mathar Ash Shamali Saudi Arabia (+96611) 464-7272 [email protected]

Dr.Hussein Alawneh
Consultant pediatric endocrinologist

Address: Dr. Sulaiman Alhabib Medical Group Takhassusi Road - Rahmaniya - Riyadh POBox: 2000 Riyadh/11393

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Wolfram Hero’s

We decided to carry the flag for Rare diseases and wolfram syndrome in Saudi Arabia and create a community to an umbrella for Rare diseases.

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